Patients Like Me: Get Your Data Out of the Silo

I stumbled upon this TED Talk yesterday and found it too compelling not to share.  The speaker, Jamie Haywood describes his brother’s fight with ALS and the ingenious website they built together, where people share and track data on their illnesses.  Their discovery? The enormous power of collective data to explain and predict disease progression.

An individual patient can know their own symptoms, what drugs and treatments they are using, etc, but to deeply understand what fellow folks afflicted with your ailment are going through and how those findings can help you on your path, is far more powerful knowledge.

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